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The Development of Burden Evaluation System for Family Caregivers of Chronic Diseases

Author: ZhouRong
Tutor: ChenHui
School: Huazhong University of Science and Technology
Course: Epidemiology and Biostatistics,
Keywords: Family Caregivers Burden ZBI Simplify Evaluation system
CLC: R473.74
Type: Master's thesis
Year: 2011
Downloads: 71
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Abstract

Objective To describe and analyze the characteristics of China's urban and rural communities chronic disease family caregivers, to construct multidimensional caregiver burden evaluation system based on a simplified version of ZBI scale develop direct burden of chronic diseases family caregivers evaluation. Method using cluster sampling method, and interviews with the major family caregivers in urban and rural communities in Hubei Province, 794 different kinds of chronic diseases, respectively, through the ZBI (of Zarit Caregiver Burden Interview), the CES-D (Center for Epidemiological Studies Depression Scale) World Health Organization determination of the quality of life scale (WHOQOL-BREF Chinese Edition) assessed the direct care of the family caregiver burden, the case of depression, quality of life, while using homemade entry evaluation caregiver self-care, satisfaction, sense of competence, security and other aspects of burden; chronic diseases, activities of daily living ADL (Activities of Daily Living) assessment. Entries total table by comparing ZBI scale screening simplified scale entry into other caregiver burden dimensions based on building a multidimensional caregiver burden evaluation system, and its reliability and validity analysis. Results 1. Chronic disease characteristics of family caregivers family caregiver women than men, average age 55.40 ± 11.71 years, more than half of the patients spouse. Compared with the rural, urban communities, the female share of chronic disease family caregivers constitute a relatively high household income higher (P lt; 0.0001); whether urban or rural, carers patient spouse, but urban caregivers children is higher than in rural areas. Urban and rural caregivers age, education level, marital status, whether living together with the patient and so was no significant difference (P gt; 0.05). Town caregiver ZBI score of 26.41, far lower than rural caregivers 41.87 and disease in rural caregiver ZBI scores were higher than the city (P lt; 0.05), urban and rural areas are in mental illness caregiver ZBI score the highest, a different disease kinds caregiver ZBI score difference was statistically significant (P lt; 0.001). The comprehensive caregiver characteristics cluster analysis carers are divided into five categories, three categories of the different characteristics of urban caregivers directly burden were lower, rural caregivers directly burden were higher. ZBI-scale simplified entry 2,3,4,10,11,17,19 selected simplified scale composed of the simplified scale the ZBI ₇. Compared with other simplified version, ZBI ₇ Chronbach's a coefficient of 0.90, only slightly lower than the ZBI ₁ 2 0.91 in each disease are greater than 0.84, its internal consistency. Correlation coefficient of each version simplifies Scale total table were higher, ZBI ₇ reached 0.95, in different diseases 0.90 ^{0 .96, its better concentrated on behalf of the original table. ZBI ₇ and ADL subscales total table height. ZBI ₇ also 7 disease caregivers directly burden is divided into three groups of high, medium and low, good discrimination, the ability to distinguish between different types of diseases, caregiver burden directly with the original scale and distinguish different degrees of direct burden effect size. ROC curve comparing various versions of simplified scale specificity and sensitivity, in addition to the ZBI ₁ 2, ZBI ₇ area under the curve was significantly higher than other versions. Description The ZBI ₇ to fewer entries to achieve good reliability and validity, suitable for practical use. 12 entries. Burden of chronic disease family caregivers evaluation system will ZBI ₇ and the four dimensions of self-care, satisfaction, sense of competence, safety is included in the the caregiver burden evaluation system, through exploratory factor analysis of 10 entries, 5-factor structure, the cumulative contribution rate of 58.01%, the evaluation architecture conceived dimension. Total evaluation system Chronbach's a 0.74, each dimension of the total evaluation system were significantly correlated (P lt; 0.01). Evaluation system for the total score and the CES-D was significantly positively correlated (r = 0.63), and QOL coefficient of -0.51, and its psychological dimension correlation coefficient. The sub-dimension direct burden, self-care and the CES-D, domains of WHOQOL various dimensions and ADL were significant with correlation satisfaction only with the physiological, social, sense of competence and the CES-D, physiological, psychological there is significant correlation. Different diseases in addition to the self-care dimension, the other dimension scores were statistically significant, mental illness caregivers do not pay attention to self-care, the lowest satisfaction, security, the lowest and worst sense of competence, directly heaviest burden. The correlation of the different dimensions of the evaluation system with different demographic characteristics, the needs of carers are inconsistent. Family caregivers conclusions rural chronic disease burden is generally higher than the city directly. A simplified version ZBI Scale (ZBI ₇) represents the original table. Containing direct burden, self-care, satisfaction, sense of competence, safety 5 dimensions, the reliability of the of 10 entries caregiver burden evaluation system in the evaluation of different types of caregiver burden, validity, to reflect the characteristics of different populations of burden can be used for the assessment and selection of community-based chronic disease family caregiver burden.}

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